zondag 16 juni 2013

inspirend verslag van een 'blog'-genoot...

The Silent Warrior – The Secret Life Of A Pain Patient

Posted Apr 07 2013 4:31pm
Pain patients are silent warriors.

Every day we wake up – if we have slept – to fight another day. Each daily task exhausting.
Getting up, getting dressed, making food, making a bed…..so simple and without thought for so many, but for us, a battle to be fought.
We put on our armour, just like soldiers. Shield ourselves from the silent disapproval or disbelief of so many. Hide from our emotions or the visible emotional effect we have on those we love.
Seek cover from the assault of failure, that comes from just our sheer existence in pain.
We prepare for battle with Doctors, Hospitals, Employers and Family.
We treat our injuries any method we can;  with resources, either available or affordable.
Lick our wounds in private, so no one will see our pain and suffering.
Feel the rot and sickness on our insides, but the outside looks normal. So who is to believe our pain?
We lose sometimes……not having the energy to even get up off the couch or out of bed. Not wanting to survive anymore in this constant burning state with minimal relief ever. Tired, so very tired of the pain, of watching others affected by our circumstance. Not wanting to hold them back in their own battle. Sometimes, just sometimes wanting to be left behind….wanting to be put out of our misery.
Sometimes we win…..we have a day without pain. A day we are so very grateful for. A day where we push ourselves to far, because we want to suck up every second of the pain free moments. To feel like we are human, normal, beautiful and strong …..instead of sick, weak and ugly.
No parades for our battles.
No memorial for our losses.
 No fanfare for our successes.
Blame, ignorance, cruelty, anger, sadness and pain that is recognized. Which leaves us so alone when we win.
Our losses evident – wins silent.
The solitary life of a Painie. We are lonely, sad, misunderstood and sick.
We are also people who we should be proud to be who we are.
Just the days we feel good, we appreciate more than those without pain.
We recognize kindness  as genuine, loving and true more than the average person. Those who have given to us, have done so without reward or medal for standing by us every day. They just do.
We can appreciate love more than most. It takes special people to truly love us.
We are granted humility, patience, understanding, empathy. Others are not so lucky.
We are the silent warriors, but we don’t fight the battle alone. uit ...

woensdag 5 juni 2013

een zwarte dag in mijn revalidatieperiode

Stralend weer toen ik weg ging naar mijn kinesiste. Aan de auto sloeg mijn noodlot toe : ik zakte door mijn knie en lag daar met mijn - zo goed genezen knie - helemaal onder mij geplooid. Een enorme pijn overspoelde me en de shock van de val ,deed me niet direct rechtstaan. 
Deze val betekent een grote stap achteruit in mijn revalidatieproces : bepaalde spieren zijn beschadigd, waardoor ik bewegingen, zoals het opheffen van het been, niet meer kan uitoefenen.

Gelukkig is het zomers lenteweer, zodat de platte rust iets minder hard aankomt